Can The Shape Of Your Skull Change
Skull shape Changes
Hullo all, I am not sure if I am going a bit batty, merely I think that my skull is changing shape, with bumps and ledges that I am sure were not in that location before. Generally the changes seem to be behind the ears and back of the head going into the neck. Is is just me going loopy or has anyone else had experience of this?
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How-do-you-do Chrissie10,
That would be something enough to call your haematologist and possibly a trip downward to your GP.
Based on that you have alleged in your profile that you awaiting confirmation of Principal or Secondary Polycythaemia i strongly recommend you seek medical communication, considering if the're changes in your skull (Based on what i was told while i was going through all the tests my self for Polycythaemia) You need to mention it because it could be the cause. And there 'might' exist a cure / fix for it. (Don't get your hopes up [Nevertheless] ) but everything is worth investigating.
Are you experiencing head aches, blackness outs or fits or annihilation like that since earlier during or later on your initial preliminary diagnosis? (Obviously you lot experience most if not all the other symptoms like anybody else with Poly, but information technology'due south a good idea to make a list to take with y'all to your haematologist: Suspension it down into common & known symptoms as best you lot know, followed by others unknown like the changes to your Skull Head shape behind the ear, head and neck etc...)
I have never experienced this myself. (Lumps or swelling on / in the side / dorsum of my caput)
I Have Secondary Polycythaemia and i spend a lot of time looking for anything that might exist the cause. Later over five and a one-half years of this i wish i actually knew what it was.. Simply it has come to light that my cyst (Somewhere bad-mannered to explain ) might be the cause - only their are mixed views nigh it. I assume it'southward a 50/50 adventure that it could be the cause and stop (When operated on) the Polycythaemia.
Growths in the Caput, Liver or Kidneys can crusade Polycythaemia (Secondary) equally can a COPD (A lung disorder [Hence the X-ray assuming you've had that now] there is a lot more to the latter subject area than declared here.)
I promise this helps and at the end of the day "If in doubt check it out!" 
God Bless you
Geoff
I'm headed to the Mayo Clinic tomorrow I had a feeling information technology wS my teeth. I will postal service annihilation I observe out
Hey, I'chiliad new. I have similar changes and feel similar I'grand admittedly crazy. But I know at that place'due south changes. I have TMJ. Also have had an abnormal ANS this calendar week. Information technology's parasymtomatic something.. may non be related only information technology's neurological. Please tell what your results from mayo clinic. Thanks
P.Southward.
I am due for an op now simply no appointment take been prepare notwithstanding. Hopefully after Christmas.
P.P.S.
I asked a dumb question in my postal service - are your experiencing headaches? Of course yous are: you mail service it a while ago..
(I'm Glad nosotros take the history hither @_@ )
Thank you lot Geoff for all of your advice, it is greatly appreciated. I promise that y'all get your op date soon. Yes I have yet got the headache that started 3 weeks ago, its not a bad one, just fiddling and in that location all the time. I am back to GP for echo blood tests next week, so will probably mention the head bumps so.
How-do-you-do Chrissie,
New to grouping, but read about your head...ouch. I'g wondering what your dr. said? I accept an odd change in my skull that I check in on just have never mentioned to my doc. Symptom-o-Rama with MPN's I often am left wondering....what's a symptom, what's aging, what'due south a side effect of HU....etc. anyhow. I hope your headache has left and you got an respond nearly your shape shifting skull...blessings
How-do-you-do Nirhebe, Well GP said she didnt know what my head shape is usually so couldnt comment. Headaches are still ongoing - weeks and weeks now. Consultant has ordered a CT scan which I have on Thursday next week, so will see what comes of that.
Hullo Chrissie! My name is Anya and 50 am from Ukraine. l live in states about 5 years and final months 50 can see that my skull is changing. 50 dont know what to exercise. fifty went to doctors and had ct but nil wrong there. Doctors think that l am crazy merely l see changes in my head. Delight let me know what you lot observe out. Thank you!
The pineal gland might be expanding along with the crown. It is actually nothing to worry about believe it or not.
Hi. I have experienced the same over the last few months. My wife has noticed the difference besides. But I suffer from epilepsy (nights only) and the alter happens after a seizure. I have decided to tell my neurologist next Monday. I'll tell him there are a few others who desire to run into him too. 
Hi, like you I have noticed same thing on my skull shape, bumps and ledges. I starting time noticed on forepart of my head and ow I have checked back, as you said behind ears and there changes there too. Will talk to my haematologist in my next engagement. Shear with us afterward your CT scan.
Wishing you well
hullo
Oh boy, I hope y'all are all the same checking in on this forum. I know exactly what yous are talking about. I have experienced the aforementioned condition in my head for three years now.. Severe changes in the size and shape of my head.. information technology starts with the hairline and scalp and pulls backwards and create bumps in the dorsum of your caput. It is fairly common but with cases like ours, they need to be addressed if you can't await over them because of pain or insecurities. It starts with TMJ, which is a condition in which your teeth don't bite evenly, either from complications with wisdom teeth or the removal of wisdom teeth.. or root canals. When the teeth don't see evenly, the disks in between the jaw joint move out of position and loosen the jaw. When doing strenuous activity, this situation becomes much worse. My caput changes on a minute to minute basis believe information technology or non.. it has gotten that bad. Catscans and bloodtests won't tell you squat. You need an MRI of your neck. I got ane 3 years later which happened to be this past week. Information technology showed I have a bulging deejay in my neck and information technology is pinching my nerve.. which is pulling on my scalp and pulling the muscles in my caput backwards. Although this is somewhat common, institute in many men that have shaved heads from bad hairlines etc, my case is so bad that I am in constant aches from my pinched nerve and I take been prescribed cortisone pills. If they don't work I must do cortisone injections, and if not, cervix surgery. I really hope yous still check in on this because afterwards years of existence called crazy past doctors and my family, and existence told "the caput doesn't change shape" one.v meg times, I finally take the diagnosis. I hope hope hope you see this and that this helps people because Ive been suffering for years then badly and nobody deserves what I have gone through.
hi. iv'due east been experiencing tmj over the past few years. it's only getting much worse.though i am able to handle the pain information technology's causing past doing exercises i'm really worried about the mis allignment of the structure of my face. can the head get back to it's normal size and shape?
Hi CaseyM, I was wondering if you lot had/have headaches too. I've noticed changes in my scalp, indentations mainly. My other symptoms are tmj clicking, cervix grinding, bad headaches, sore/painful scalp, ear pain and some dizziness. I've had an mri of my brain, eeg, ct scan of my sinuses, ears checked and nothing. I'one thousand due for an mri of my neck side by side week, only I've been very worried. Pain killers don't help. Thanks!
Omg this sounds identical to everything I'm going through!
I am too! I thought it was my fibromyalgia progressing, but the major shift in my over all skull shape and the new depression and sensitivity have made me nervous. I think i may have TMJ equally well but information technology'south undiagnosed at this point. I'll update later i see my GP.
Hello CaseyM, I accept the same trouble, if you can become ahold of you ?
did yous detect relief from the cortisone injections?
howdy! my proper name rohit u tin call me roya i accept some question for u. i read your post i am convinced with u just my problem is not only almost my head my total torso is changing shapes. first my caput nerves pain little so information technology goes through whole body till my anxiety slowly slowly its irresolute shapes. i am 24 yrs but my i feel i similar i am too old. my doctor say its all in my head, i think a lot that why it is. my one-half body has alter shape from inside and one-half is remaining niggling bit. i k really confuse what to do. main notation i was drug addictted simply at present i dont practice anything just then besides its non helping. pls if you lot understand my trouble pls help me out pls. what said nigh the jaws and neck u were going i am also in same instance but with that my whole torso is irresolute and existence to be weak. pls pls pls pls assistance me out
I actually demand to show your explanation to somebody who will listen considering this is PRECISELY what I am experiencing!! Neurologists at the hospital retrieve I'm crazy they have blamed poor slumber and effort to tell me I'm depressed when I'm non - I'grand just and so sore all the time and have terrible headaches which is why I run across the neurologist! They stick me on all sorts of "trial medications" which is cool given they oasis't even run any tests. I'm so relieved to see your description.
Question - did you go any grey shadows on your face (or pare next to the bumps), and also is at that place anything yous successfully did to care for it? (Did y'all treat the TMJ, go a dental device??? Etc)
Thankyou over again!
Sorry I besides wanted to ask if you lot experienced a subtract in your overall height, because I've also shrunk 5cm in a year.
Betwixt skull changes, headaches, tinnitus and my trunk shrinking - no wonder I have musculus pain everywhere. I but desire to end it - I'm so terrified of some degenerative consequence existence the cause.
Casey, I'm new. Please update your condition. I retrieve I'thou just losing it. I've got same symptoms so concerned. I'thou looking for a neurologist at present. I had an abnormal ANS then don't understand. Information technology's PADS Parasymtomatic
Something.. ugh I can't remember the name of it. It may not be related simply this is neurological.
Yes I am sixty 3 and my skull is changing.I don't know why was hoping to get info on this site.
Hello Coleen, what kind of changes practise yous have? Mine are in the bones.
In bones and by the way my jaws accept never lined up and has caused my jaw to get locked in mouth open up position.had to hit under the chin to get it to close and I get sharp pains in ears destine.
You lot could peradventure have a condition called Temporalmandibular Joint Disfunction Syndrome, TMJ for short. Best to see your dentist, or Maxillofacial Consultant for a diagnosis.
Hi Crissie,
I have similar changes, no pain or annihilation. I just find the ledge (rising) from my brow to crown when I bear upon it. Weird. I'm am little elderly, the alter is new.
Hi i have the same thing, big bumps on the back of my head right on the creases of my head. I dont suffer any headaches at all. My local barber 1st noticed this and brash me to get to infirmary, so i did and they took a scan and said naught was wrong. my head was never like this and seems to b getting worse. I dont know what to do every bit information technology doesn't injure at all.
Hi take y'all thought that you may want to look at gristly dysplasia of the skull?
I also saw my doc a month agone and mentionec ridges and raised areas running forth the suture line of my scull. I swear its never been like that before and feels actually pronounced. I know its new cause I have a severe pilus dye allergy i developed 10 years ago and now utilize henna and indigo. I know what mt scalp feels like commonly and this aint normal. Doc was not fussed so im going to endeavor another doc to see ehat they say. Any updates from others would be good
Thankgod !! In that location are people who would believe me on this.
I take been observing modify in shape occationally and specifically during headaches.
None believed me on this.. But, I was certain it's happening on the roof acme.
I am glad.
Cheissie, I would be happy to hear about the remidies you would take adopted.
Regards
Abhi
Hi abhi it may be gristly dysplasia
My osteopathic doctor said your basic are supposed to move, but mine don't. Maybe that's why I have an egg sized lump on the back of my skull?
Hello maybe information technology's fibrous dysplasia of the skull?
I take noticed like changes to my caput as those mentioned here. Doctors and family seem to think I'm crazy, merely I tin can feel the changes. I have suffered with migraines for years but they have recently worsened. Supposed to get an MRI of neck but insurance had simply approved the 1 for my back so far. Take to go back to PCP to become new authorization asking put in. At least seeing that others are experiencing this too I can know I am not crazy.
I'One thousand so glad to see this post` wish it told what was the event for Christie?? I wondered if it was ever like this earlier and I simply didn't notice on the left back of caput is a good sized lump, with major headache for 3 weeks , MRI ordered , pain Dr. Gave trigger point injection and said my neck felt similar a rope+, TPI numbed it for role of a solar day and then boom! Back!, i'Thou certain I have TMJ & bruxism, realize I'one thousand grinding my teeth and endeavor to quit all the time, 800.00 co-pay for MRI, I might be 90 earlier I can get information technology, ugh! Lol! Cheers all for sharing your thoughts on it
Hi... My fiance have been experiencing all these and well, him having anxiety I didn't want to believe at get-go merely equally I've checked online, and establish this, information technology'south kind of scaring me...
Chrissie10 , I pray you have been doing a whole lot better.
May I know what your current state of affairs is now afterwards all the things that was checked?
I would actually appreciate an reply...
Cheers in advance and God anoint!
Hi. I've had changes in the shape of my skull and found some parts felt soft. I have just recently discovered some other i.
I did have a head CT scan 3 years ago and I was told that the soft bits were benign lesions. My neurologist said they were fine and needed no treatment.
I may possibly become back and see him again due to new modify.
Hope this helps.
Natasha.
Same thing is happening to me my md seems to think that am crazy.
Going through that right now it'due south doing me nuts supposed to go in today but MD had to postpone
I have constitute since i was around 50 years my head feels like an outward helmet shape behind my ears and the lower expanse near my neck.. I take noticed visual changes more than than usual as well.
Dear Chrissie10,
I have exactly the same problem been monitoring it myself for the last 6 years and been to the doctors simply was just sent away telling me it was naught our skulls are fabricated upwardly of plates and not all skulls are the aforementioned. Basically not listened to at all. But i have had bug with headaches and migraines too for years and recently residual problems and eyesight changes but just put them down to historic period. But there is ever that picayune that it could be something more just don't want to sound like a loon to everyone.
I had the same from my GP,Since around september ,my whole caput inverse shape .I already had a "Widened forehead" with bone hurting and possible nerve hurting in os of skull and facial features. I went to my GP who said the same "its the plates of your skull"and in a telephone consultation on tuesday he said " i am continuing by my conclusion -information technology is not Pagets Affliction".I never suggested I thought information technology was Pagets Illness although everything points to Pagets Disease.I had a few days when I could not get out of bed for pain and what i can just describe every bit "heaviness" and some other day had to go to bed because I could not function,I endure with dizziness and tinnitus-hearing hissing sounds and diagnosed with hearing loss.I too am actually worried it is something serious that needs investigation and know my GP will not take this seriously,He keeps on about previous scans being normal but these were subsequently the changes to my confront and skull get-go occurred-around 2011.I take been fightign this long to go a diagnosis and notwithstanding practice not take a diagnosis.
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